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3rd Annual Gene Therapy Patient Engagement Summit
3rd Annual Gene Therapy Patient Engagement Summit
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3rd Annual Gene Therapy Patient Engagement Summit

By

Hanson Wade

2 Followers
13 Jun 2023 - 15 Jun 2023
Free Registration

Event Details

3rd Annual Gene Therapy Patient Engagement Summit

The role of patient engagement in gene therapy development is changing.
As the global healthcare system accelerates its acceptance of gene therapies as one-time, potentially curative, treatment options for rare diseases, the role of patient engagement in informing drug development strategy is evolving.

At this interface lies the 3rd Gene Therapy Patient Engagement Summit, uniting patient advocacy and engagement experts from leading gene therapy and gene editing drug developers, along with patient groups and patients themselves. Talks, workshops, and group discussions will shed a light on how to better integrate the patient voice into gene therapy programs at crucial stages of the drug development process.

Join us in Boston this summer to gain the actionable insights, tools, and strategies you need to better implement patient input into patient-centric gene therapy programs.

Download the full event guide to see the expert speaking faculty and content in-store for 2023, carefully co-designed with leading patient-facing figures in the field.

URLs:
Website: https://go.evvnt.com/1546562-0?pid=10018
Tickets: https://go.evvnt.com/1546562-2?pid=10018
Brochure: https://go.evvnt.com/1546562-3?pid=10018

Prices:
Conference + Workshop Day - Industry Rate: USD 4446.00,
Conference Only - Industry Rate: USD 2799.00,
Conference + Workshop Day - Standard Rate: USD 5446.00,
Conference Only - Standard Rate: USD 3499.00

Speakers: Brendan Hayes, Director - Education and Innovative Therapies, National Hemophilia Foundation, Brian O'Mahony, Chief Executive Officer, Irish Haemophilia Society, Craig Martin, President, Rithm Health, Daniel Leonard, Senior Director - Global Patient Advocacy, uniQure, David Rintell, Head of Patient Advocacy, Bridge Bioscience Corp, Jean-Pierre Malkowski, ED Patient Engagement Center of Excellence, Novartis AG, Jennifer Helfer, Most Recently Head Patient Advocacy and Engagement, Encoded Therapeutics, Jennifer McNary, Co-founder and Principal, Canary Advisors LLC, Jessica Riviere, Vice President - Patient Advocacy and Patient Engagement, Ultragenyx Pharmaceutical Inc, Kendall Davis, Early Development Lead, Patient Advocacy, Spark Therapeutics, Kristen Huehbner, Associate Director, Global Patient Advocacy and Engagement, BioMarin Pharmaceutical Inc., Melissa Penn, Director, Patient Engagement R and D, Bayer, Mindy Cameron, Life Sciences Consultant, AdvocacyWorks, Nan Doyle, Associate Director, Patient Insights - Rare Diseases Drug Discovery Unit, Takeda, Nicole Boice, Founder and Chief Mission Officer, Global Genes, Sara Johnson, Davis Senior Director - Patient Advocacy and Government Affair, CRISPR Therapeutics, Sujan Siva, Head of Medical Affairs and Patient Advocacy, CSL Behring, Thomas Bols, Head of Government Affairs and Public Policy, PTC Therapeutics

Entry Fees

Free Registration

Categories

Event Frequency

One Time

Event Timings

(GMT-4:00) Eastern Time (US and Canada)
09:00 AM - 04:00 PM (Jun 13, Jun 14, Jun 15) (Public)

Speakers

Alison Kujawski
Alison Kujawski
Senior Outreach Manager, American Society of Cell and Gene Therapy
Amanda Rohrig
Amanda Rohrig
Director - Patient Advocacy, Bridge Bioscience Corp
Andrea Wilkinson
Andrea Wilkinson
Global Head, Patient Engagement Portfolio Strategy UCB
Behtash Bahador
Behtash Bahador
Director, Health Literacy, CISCRP

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Event Location

The Westin Boston Seaport
425, Summer Street, D Street / West Broadway, Boston ,
Suffolk County 02210, Massachusetts, United States
Official Link :

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